THE HARD WAY

Audio-book Review
By Chet Yarbrough

(Blog:awalkingdelight)
Website: chetyarbrough.com

Neuro Tribes: The Legacy of Autism and the Future of NeurodiversityNeuro Tribes

Written by: Steve Silberman

Narration by:  William Hughes

STEVE SILBERMAN (AMERICAN AUTHOR, CONTRIBUTOR TO WIRED MAGAZINE)
STEVE SILBERMAN (AMERICAN AUTHOR, CONTRIBUTOR TO WIRED MAGAZINE)

“Neuro Tribes” reminds one of the gambling phrase “the easy way and the hard way”.    On a Las Vegas craps table, rolling two die with the same number and repeating it is the hard way.  From Steve Silberman’s story, parents successfully raising a child with autism is like rolling the dice the hard way because the odds are stacked against them.  This may not be a great analogy but Silberman shows that parents have to work harder to understand and nurture a child who suffers from any one of the many variants of autism.

Silberman tends to name drop famous people who have never been diagnosed as autistic, but exhibit some of the characteristics of autism.  Silberman offers brief biographies of Henry Cavendish, Nikola Tesla, Paul Dirac, and others.

HENRY CAVENDISH (1731-1820, BRITISH NATURAL PHILOSOPHER, SCIENTIST, CHEMIST, AND PHYSICIST)
HENRY CAVENDISH (1731-1820, BRITISH NATURAL PHILOSOPHER, SCIENTIST, CHEMIST, AND PHYSICIST)
NIKOLA TESLA (1856-1943, SERBIAN AMERICAN INVENTOR, ELECTRICAL & MECHANICAL ENGINEER, PHYSICIST, FUTURIST)
NIKOLA TESLA (1856-1943, SERBIAN AMERICAN INVENTOR, ELECTRICAL & MECHANICAL ENGINEER, PHYSICIST, FUTURIST)
PAUL DIRAC AT THE TIME OF PULITZER PRIZE AWARD
PAUL DIRAC AT THE TIME OF PULITZER PRIZE AWARD (1902-1984, THEORETICAL PHYSICIST WHO MADE FUNDAMENTAL CONTRIBUTIONS TO QUANTUM MECHANICS)

Not every autistic person is a genius but Silberman’s point is that a person who may have social communication difficulties, obsessive/compulsive behaviors, or attention issues have become incredibly valuable to society.  These three men are characterized to have all of those symptoms.  To suggest autism implies worthlessness is a slippery slope toward abandonment, psychiatric incarceration, concentration camps, medical castration, and threatened individual or collective extermination.

Silberman recounts the history of  people who do not fit within social conventions.  In some well-known instances societal non-conformists are isolated, sterilized, and/or murdered.  They are classified as developmentally or intellectually inferior human beings to be eliminated by society for their aberrant physical abilities or mental faculties.  One may think this is a description of Hitler’s Germany but Silberman recounts the story of the U. S. Supreme Court’s ruling in Buck v. Bell.

OLIVER WENDELL HOLMES (1841-1935, JUSTICE OF THE SUPREME COURT 1902-1932)
OLIVER WENDELL HOLMES (1841-1935, JUSTICE OF THE SUPREME COURT 1902-1932)

In 1927, no less than a giant of the U. S. Supreme Court, Justice Oliver Wendell Homes Jr., writes the majority opinion that says compulsory sterilization of the intellectually disabled is not a violation of the Due Process clause of the 14th amendment.  Common sense, if not history, shows that intellectual ability, by any measure, is a small part of what a human being is or can be.  The very idea that there is a criterion that objectively measures intellectual capability is repugnant.  Mrs. Buck is involuntarily incarcerated and Mrs. Buck’s daughter is sterilized based on a 1924 Virginia law.  The United States reportedly sterilized 60,000 American men and women through the 1970 s (See January 2016 Newsweek report).

BUCK FAMILY (MOTHER AND DAUGHTER STERILIZED BY THE STATE)
BUCK FAMILY (MOTHER INVOLUNTARILY INCARCERATED, AND DAUGHTER STERILIZED BY THE STATE)

Silberman offers a short history of the growth of Eugenics.  The idea is that, like a patch of peas, human beings can be bred to eliminate any undesirable characteristics.  No civilizations’ hands seem clean.  Silberman reminds reader/listeners of the child euthanasia program in Germany and how a German family’s support of Hitler leads to a request that their child be euthanized because of physical deformity.  It is estimated that “…5,000 children were victims of this program” (see Wikipedia “Child euthanasia in Nazi Germany).

HANS ASPERGER (1906-1980, AUSTRIAN PEDIATRICIAN, MEDICAL THEORIST, AND MEDICAL PROFESSOR)
HANS ASPERGER (1906-1980, AUSTRIAN PEDIATRICIAN, MEDICAL THEORIST, AND MEDICAL PROFESSOR)

Silberman reports on the diagnostic discovery of autism by Hans Asperger in the 1940 s.  Asperger’s storied career includes association with the Nazi Party that is both reprehensible and insightful.  In defining autism, Asperger suggests children with autism are of little social value.  This categorization of human beings feeds Hitler’s extermination of handicapped and mentally challenged children and adults.  Despite this horrendous consequence, Asperger’s careful examination of autistic behavior provides insight to its symptoms and potential treatments.

Silberman notes Asperger’s prescient understanding of autistic children’s needs.  Autistic children need to be listened to and their behaviors analyzed to provide treatment that ameliorates social dysfunction.  Though Silberman does not mention the Montessori school of education, Asperger suggests that autistic children should be educated in ways that reinforce their natural interests.  Asperger, according to Silberman, had an uncanny knack of understanding what his patients were interested in and followed that lead to integrate them into society.

A part of Silberman’s story is about unscrupulous medical professionals that offer cures for autism that have nothing to do with science and everything to do with financial exploitation of parents that are overwhelmed by their child’s autism.  These “doctors” provide bogus treatments like blood chelation to remove impurities that are alleged to cause autism.  Silberman suggests there is no cure for autism.  There is only the promise of amelioration with the hard work and understanding of parents and caregivers who appreciate the value of human life.

For parents, the hard way involves toleration of symptoms of autism while reinforcing those behaviors that comport with the innate abilities of their children.  In the process of careful listening and observation, parents can reinforce socially acceptable behavior and diminish anti-social activity.

Silberman implies autistic human beings exist in every society.  Symptoms of hyperactivity, singular focus on particular subjects, poor communication skills, antisocial behavior, lack of interest in mutual achievements or interests, and a lack of empathy are symptoms that exist in most human beings, at some level.  Silberman implies it is a hard roll of the dice for parents with autistic children.  Their rewards can be monumentally greater but the odds are against autism’s cure.  Not every autistic child will be a Cavendish, Tesla, or Dirac but one can choose to believe every child is a gift to be treasured for whatever they become.

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